Hello Everyone! Quick update…I’ve been on the strong antibiotic now for 3 weeks and am not seeing any signs of the infection decreasing. I’m still in a LOT of pain and am spending most of my time in bed resting because this has completely wiped out the little energy I did have. I have one more week on this current medication and if the infection doesn’t clear up in the next week I’ll have to go on antibiotics in shot form. REALLY HOPING and praying I won’t have to do that. Specific prayer request is for the last week of oral antibiotics to be successful. Thanks so SO very much for your prayers.
I feel far too weak to write anything very long tonight…but would really appreciate a very specific prayer request. I’m fighting a pretty severe infection right now that we just finally found out yesterday is specifically Hemolytic Coli. I’m incredibly miserable to say the least and so exhausted from all the Lyme Symptoms flaring up, this infection raging and the list could go on… It’s great that we know what the infection is….but because of my liver condition I’m EXTREMELY limited as to what my options are for medications to fight it.
Thanks so much for praying. <3 This is now the 5th gut infection I’ve had to fight in the past year and….it’s incredibly discouraging, exhausting and painful to say the least.
Thanks so much everyone!
We’re asking for 2 specific prayer requests right now.
1.) Please be praying for Monica to start feeling better soon. She’s been extremely weak the past few days and the inflammation/pain/Ulcerative Colitis is really wearing her out. It’s been almost 4 months now of her dealing with it constantly….we’re really praying for improvement with that soon. It causes the Lyme and inflammation throughout her entire body to flare up.
2.) Please pray for God to provide the finances we need for this week to get the medicine/nutritional support/Born Clinic Treatments and at-home treatments that she needs. We have been able to keep her somewhat maintained with diet/supplements….but we really need to get her back on the IV’s and some additional support as God provides the resources. Her specific need for this week is $677. LINK TO NEW YOUCARING FUNDRAISER
Thank you all SO much for the FAITHFUL prayers, encouragement support that ALL of you have been over and over again for Monica and all of us during these past 2 years. Because of your prayers and financial support Monica has been able to make SIGNIFICANT improvement….but there is still a long way to go. We set up a YouCaring Page for her over the Winter with her financial needs for the “90 Day Blitz” that she did…and have set up a YouCaring Page again with the projected costs for the next 12ish weeks. Unfortunately, because of her Ulcerative Colitis…the cost has gone up a lot. Thank you all SO much for the financial support and encouragement you provided Monica during her first initial 12 weeks of intense fighting. It put her ahead of the Lyme Fight by a lot. We are now we’re praying hard that this UC set back clears up soon and that these next 12 weeks bring even more healing and that she pulls out even more ahead than her first “90 Day Blitz”.
We believe she’s on the right track…it’s just taking A LOT of time…which is one of the biggest parts to Chronic Lyme Recovery.
Thank you for your prayers and support,
Cindy DeMass for Monica and all the DeMasses
P.S. Please pray that her appointment today goes well.
“…God has brought to Israel a Savior, Jesus, *AS HE PROMISED*.” ~Acts 13:23 || Thank You for ALWAYS fulfilling Your promises, Jesus. —– I feel like this year, more than ever before God has been opening up my eyes to see how OVER & OVER & OVER He FULFILLS His promises. Never once has He forgotten… He said it. I believe it….whether I *feel* like believing it or not based on what I see...no matter what, It’ll come to pass! Resting in His precious promises tonight. Had a couple medical appointments earlier today….making progress…but still have a lot of work to do treatment wise. Felt pretty weak today….but thanking Jesus for HIS strength, joy, grace and faithfulness that keeps me encouraged, hopeful and full of His perseverance to keep on keeping on. Thanks for your continued prayers on this journey, friends! Definitely sending all the prayers back your way as well.
Hey Dear Friends!!
Just wanted to do a quick update about how I’ve been feeling lately… I’ve been having some REALLY good days recently which has been amazing! I was able to enjoy 2 trips to Lake MI AND walk in a parade about 1 mile long with my family on July Fourth. Each of those activities were HUGE blessings to me and encouraged my spirit TREMENDOUSLY. It feels like a luxury to be able to get out of the house for something other than Doctors appointments and treatments!!! After each event I crashed in bed for 1-2 days and then to be honest, since July 4th I’ve been mostly in bed. It was fun walking in the parade…but I’m not sure how smart it was for my body…it kinda felt like it shut down after July 4th for a few days. But just the fact that I can push myself at all to sometimes do things outside of the house means that I’m slowly regaining strength and healing! I’m looking forward to the day when I don’t totally crash for days after any kind of event….but for now, I’m cherishing the times that I am able to get out of the house and enjoy myself. It’s been so long!! Thank you, Jesus!! Unfortunately, my Ulcerative Colitis is STILL majorly acting up…and keeping me in a lot of pain. I’ve been having to make 2 trips a week to my clinic in Grand Rapids instead of just 1. We’re waiting on some more tests to show more of what’s going on with that situation. It’s frustrating having this setback….but I’m confident that once I’m over this, I’ll be further ahead than before.
In regards to everyone who has been asking about where I’m at financially….I’ll be posting a new YouCaring Lyme Treatment Fundraiser page shortly with my estimated expenses for the next 3 months. (People seemed to really like seeing that from the last time.) I’m humbled, grateful, and beyond amazed at how much the Lord has used you all in my life through prayers, encouragement and financial support in helping me along this journey. Looking back to where I was before I started my first “90 Day Blitz” I’m SOOOOOOOO much better and stronger. Because of how much I’m improving, slowly but steadily….I’m staying quite strictly on the same exact schedule. Hopefully not too many more of these “90 Day Blitzes” and I’ll be ALL better! Until then I totally covet your prayers as this fight continues to be a serious and hard one. And I also cherish you PRAISING and THANKING Jesus with me for the amazing recovery that I have experienced thus far. I love you all and thank God for every single one of you!! Thank you for being on this journey with me.
Happy July Everyone!!!!
I’m sorry I haven’t posted in awhile…I haven’t been feeling up to writing at all lately. We left bright and early this morning for my Clinic…I see my Doctor about every 8 weeks and She’s amazing and I’m SO blessed to be working with such a great Doctor. The main focus is unfortunately back on healing my gut & Ulcerative Colitis…the bleeding is pretty bad still & so is the pain. My Doctor said that most other Doctors would’ve had my colon removed by now…:-( SO thankful to be working with her and doing alternative options to that route! She ordered a lot of blood work & some other tests based on the symptoms that I’m dealing with right now. I’ve always gone into the office for my UC/Peptide shots before…..but today they taught my Mom how to give them too me. My Mom has had to give me antibiotic shots before…so this is pretty similar. Dr. Born also talked to me more about my MTHFR gene mutation…and the things I will need to take for that. She doubled my thyroid medication since that is still too low and we also talked about the Lyme. Honestly, between Lyme, Ulcerative Colitis, POTS, this genetic issue…..I’m feeling so overwhelmed and my mind is SWAMPED. As soon as we got home I just wanted to curl up in a little ball and cry…..not because I’m discouraged or depressed or sad…..I’m just worn out. Sometimes you need a good cry and then you’re better again somehow. At least ready to keep fighting hard. :-) I was thinking a lot about my Viola/Orchestra teacher today…..so many times back in High School she would give me a song that seemed like WAY too large a mountain to climb….and I didn’t think I could learn it. But she always said, “Practice doesn’t make perfect…PERFECT practice makes perfect.” In other words…it’s CONSISTENCY….practicing DAILY…and pretty soon that one bar of music mastered turns into 5 and 10 and 20 and then the whole mountain (song) is conquered and mastered. :-) And the once horrible sounding song is now gorgeous! Yes, I know….horrible analogy…when I was telling it to my Mom today she was kinda like….and what does that have to do with Lyme?? LOL! My mind must think different than most. ;-) I guess….I just felt like that was a really simple analogy what this fight is like. Full Recovery seems SO unattainable right now….so daunting…and impossible….just like some of those old viola recital songs Mrs. Simpson gave me. But being consistent with this fight every single day IS already and WILL continue to bring results. And someday….SOON Lord willing the mountain will be conquered and just the beauty of this experience will be left. On an encouraging note, my Doctor was looking at test results from EXACTLY (to the date) 1 year ago from today and my body is QUITE a bit better. Thank You, Jesus. Yes….I’m in a setback right now…but once we get on top of this…I should pull out further ahead than I have in awhile. :-)
I’m ready to go crash in bed….so good night world! Thanks for reading and for praying. One day closer….<3
God bless you with beautiful healing and God-sent Joy tonight and always.
I don’t have a whole lot of energy for writing tonight…I’ve been so sick today and wishing I could curl up in a little ball and sleep until all of this Lyme pain and symptoms and fight to get well is over. But since that can’t happen…I’m curled up in a little ball resting by my big sliding glass door in my bedroom watching all the storm clouds roll past and playing one of my favorite collections of music. It’s a Lullaby CD entitled, Hidden in My Heart Volume 2. My dear friend, Ruthann, gave me the CD back in 2012 and I’m pretty sure I have listened to these songs 100’s of times by now. It was the PERFECT gift for me and I’ve spent so many hours just listening to them with my eyes closed just letting the truths & hope sink into my heart and renew my spirit. The songs are so precious, beautiful, full of comfort, hope and have a very calming sense to them. If you’re looking for a good CD to get for yourself as you battle a chronic illness….OR if you are looking for a gift for someone who is sick. I’d HIGHLY recommend this one. I wanted to share one of the songs that has been on repeat this afternoon as I lay here hooked up to wires doing Lyme Treatment. Love this song right now. <3
Love and prayers to everyone! I have been slightly overwhelmed (in a good way) by the amount of e-mails and responses I’ve received from my last post, “But You Don’t Look Sick…” It breaks my heart just HOW MANY of you are out there that can relate so perfectly to that post and I want you to know that I’m praying for you and will reply when I can. <3 Keep fighting and resting in Jesus, dear brave hearts. One day closer. Keep your eyes on Jesus….Jehovah Rapha…the Lord OUR HEALER. <3 He’s got this. Just keep resting and trusting. <3