I’m sorry for this very long over-due post. Updates are happening more frequently on my Facebook page (www.facebook.com/helpingmonica) right now as my dear friend, Erin Kissling has been posting updates and pictures on there to keep everyone informed. This post is going to be rather quick as my strength & energy can disappear almost instantly right now. This is the first time in almost 3 weeks that I’ve even felt somewhat able to sit up and type and I can already feel it exhausting me greatly.
A little over 3 weeks ago I had completed 2 months of medications for my gut infection and that seemed to be clearing up and I was SLOWLY regaining strength and had worked up to biking several miles at a casual/easy pace. I was starting to feel SO much better and really thought I was on the upward swing with the infection and Lyme. And then, completely out of the blue I had an episode of collapsing and lost the ability to walk or use my arms very much. It’s not uncommon for me to have an episode like that…but then it clears up after a couple hours or after a good night’s sleep. The weakness, intense pain, burning and a whole host of other Lyme-Related symptoms continued and strength didn’t return. A visit to one of my Doctors showed us that what I was taking to break the biofilm around the Lyme Spirochetes was working and they were probably being released into my body faster than I was killing them. Hence this attack on my Central Nervous System, Muscles, Heart etc…. We are now ramping up my protocol for killing the Lyme and hoping that I pull out of this soon. I’m already seeing some improvement with being able to sit up a little easier…and typing like I’m doing right now. Most of the time though, I’m still curled up in a little ball – very nauseous, in extreme pain, and major weakness. I think where I went wrong was cutting back so much on my Lyme treatments when I was fighting the infection and starting to feel better. This battle against Lyme can be very unpredictable and very much a guessing game, even to Doctors. When Lyme is in every cell of your body, like mine is…you can’t kill the lyme too quickly (people have died that way)….but you also can’t kill it too slowly. So there is a constant delicate balance to find. Finances were also an issue in discontinuing some of my treatments and instead of trying to keep fundraising…I thought I would just continue getting better as long as I was keeping up with some at home treatments. I think that was also a mistake on my part that contributed towards this episode. Even though it’s extremely difficult having a setback again, I’ve been so encouraged by the Lord’s love & faithfulness through this trial. <3 I don’t understand it, but I know that He is here and that He is working everything out for good. <3 Even when I haven’t had the energy to read it…I’ve been holding my Bible tightly today and up close to my heart….knowing that inside those pages is all the strength, joy, hope, comfort, love & reassurance I could ever need.
I thank each of you for the outpouring of love that you continually show me in your e-mails & comments. Because of my health, I’m not able to reply to many right now…but please know that your thoughts & prayers are ALWAYS deeply appreciated and touch my heart. <3
I can tell that my body is needing to lay back down and rest now… I don’t know when another burst of energy will happen where I can write a blog post…but again, my friend is keeping up with my facebook page if you would like more frequent updates.
Thanks so much!! God bless each of you.
Hello Everyone! Yesterday I completed my 30 day round of oral antibiotics that we thought would completely knock out the infection that I’m dealing with. Unfortunately, it didn’t. I would very much appreciate prayers on what the next step is to keep fighting this nasty infection. It’s really taken the wind out of my sails physically and is discouraging to feel like I’m losing a lot of ground in the fight against Lyme by taking up so much time to fight this current more pressing issue.
Thank you all SOOOOOOO SO much for your continued prayers, encouragement and support. It blesses and helps me more than you’ll ever know.
Grateful for a God who holds all things in His hands and praying for more grace to trust Him. “ALL His work is done in faithfulness.” ~Psalms 33:4, “He gives grace to the afflicted.” ~ Proverbs 3:34,
Hello Everyone! Quick update…I’ve been on the strong antibiotic now for 3 weeks and am not seeing any signs of the infection decreasing. I’m still in a LOT of pain and am spending most of my time in bed resting because this has completely wiped out the little energy I did have. I have one more week on this current medication and if the infection doesn’t clear up in the next week I’ll have to go on antibiotics in shot form. REALLY HOPING and praying I won’t have to do that. Specific prayer request is for the last week of oral antibiotics to be successful. Thanks so SO very much for your prayers.
I feel far too weak to write anything very long tonight…but would really appreciate a very specific prayer request. I’m fighting a pretty severe infection right now that we just finally found out yesterday is specifically Hemolytic Coli. I’m incredibly miserable to say the least and so exhausted from all the Lyme Symptoms flaring up, this infection raging and the list could go on… It’s great that we know what the infection is….but because of my liver condition I’m EXTREMELY limited as to what my options are for medications to fight it.
Thanks so much for praying. <3 This is now the 5th gut infection I’ve had to fight in the past year and….it’s incredibly discouraging, exhausting and painful to say the least.
Thanks so much everyone!
We’re asking for 2 specific prayer requests right now.
1.) Please be praying for Monica to start feeling better soon. She’s been extremely weak the past few days and the inflammation/pain/Ulcerative Colitis is really wearing her out. It’s been almost 4 months now of her dealing with it constantly….we’re really praying for improvement with that soon. It causes the Lyme and inflammation throughout her entire body to flare up.
2.) Please pray for God to provide the finances we need for this week to get the medicine/nutritional support/Born Clinic Treatments and at-home treatments that she needs. We have been able to keep her somewhat maintained with diet/supplements….but we really need to get her back on the IV’s and some additional support as God provides the resources. Her specific need for this week is $677. LINK TO NEW YOUCARING FUNDRAISER
Thank you all SO much for the FAITHFUL prayers, encouragement support that ALL of you have been over and over again for Monica and all of us during these past 2 years. Because of your prayers and financial support Monica has been able to make SIGNIFICANT improvement….but there is still a long way to go. We set up a YouCaring Page for her over the Winter with her financial needs for the “90 Day Blitz” that she did…and have set up a YouCaring Page again with the projected costs for the next 12ish weeks. Unfortunately, because of her Ulcerative Colitis…the cost has gone up a lot. Thank you all SO much for the financial support and encouragement you provided Monica during her first initial 12 weeks of intense fighting. It put her ahead of the Lyme Fight by a lot. We are now we’re praying hard that this UC set back clears up soon and that these next 12 weeks bring even more healing and that she pulls out even more ahead than her first “90 Day Blitz”.
We believe she’s on the right track…it’s just taking A LOT of time…which is one of the biggest parts to Chronic Lyme Recovery.
Thank you for your prayers and support,
Cindy DeMass for Monica and all the DeMasses
P.S. Please pray that her appointment today goes well.
“…God has brought to Israel a Savior, Jesus, *AS HE PROMISED*.” ~Acts 13:23 || Thank You for ALWAYS fulfilling Your promises, Jesus. —– I feel like this year, more than ever before God has been opening up my eyes to see how OVER & OVER & OVER He FULFILLS His promises. Never once has He forgotten… He said it. I believe it….whether I *feel* like believing it or not based on what I see...no matter what, It’ll come to pass! Resting in His precious promises tonight. Had a couple medical appointments earlier today….making progress…but still have a lot of work to do treatment wise. Felt pretty weak today….but thanking Jesus for HIS strength, joy, grace and faithfulness that keeps me encouraged, hopeful and full of His perseverance to keep on keeping on. Thanks for your continued prayers on this journey, friends! Definitely sending all the prayers back your way as well.
Hey Dear Friends!!
Just wanted to do a quick update about how I’ve been feeling lately… I’ve been having some REALLY good days recently which has been amazing! I was able to enjoy 2 trips to Lake MI AND walk in a parade about 1 mile long with my family on July Fourth. Each of those activities were HUGE blessings to me and encouraged my spirit TREMENDOUSLY. It feels like a luxury to be able to get out of the house for something other than Doctors appointments and treatments!!! After each event I crashed in bed for 1-2 days and then to be honest, since July 4th I’ve been mostly in bed. It was fun walking in the parade…but I’m not sure how smart it was for my body…it kinda felt like it shut down after July 4th for a few days. But just the fact that I can push myself at all to sometimes do things outside of the house means that I’m slowly regaining strength and healing! I’m looking forward to the day when I don’t totally crash for days after any kind of event….but for now, I’m cherishing the times that I am able to get out of the house and enjoy myself. It’s been so long!! Thank you, Jesus!! Unfortunately, my Ulcerative Colitis is STILL majorly acting up…and keeping me in a lot of pain. I’ve been having to make 2 trips a week to my clinic in Grand Rapids instead of just 1. We’re waiting on some more tests to show more of what’s going on with that situation. It’s frustrating having this setback….but I’m confident that once I’m over this, I’ll be further ahead than before.
In regards to everyone who has been asking about where I’m at financially….I’ll be posting a new YouCaring Lyme Treatment Fundraiser page shortly with my estimated expenses for the next 3 months. (People seemed to really like seeing that from the last time.) I’m humbled, grateful, and beyond amazed at how much the Lord has used you all in my life through prayers, encouragement and financial support in helping me along this journey. Looking back to where I was before I started my first “90 Day Blitz” I’m SOOOOOOOO much better and stronger. Because of how much I’m improving, slowly but steadily….I’m staying quite strictly on the same exact schedule. Hopefully not too many more of these “90 Day Blitzes” and I’ll be ALL better! Until then I totally covet your prayers as this fight continues to be a serious and hard one. And I also cherish you PRAISING and THANKING Jesus with me for the amazing recovery that I have experienced thus far. I love you all and thank God for every single one of you!! Thank you for being on this journey with me.
Happy July Everyone!!!!