My Lyme Story

It was November 2005.  I went on a hike in the rugged beauty of Oklahoma and my life was forever changed. I got bit by THREE ticks on that hike…but didn’t think anything of it. Next thing I knew I was in bed with a fever and had aches and pains all over my body. Nobody else I was with got sick.  What I thought was the flu, was the Lyme Disease invading my body from one of those tick bites.

I started seeing Dr. after Dr. after Dr….  We did do a test for Lyme right away…but now years later I know that the blood test we did wasn’t very accurate and so, of course, it came back negative. Nobody could explain the immense weakness, fatigue, headaches, body aches, memory fog, body numbness, etc. that was going on.  I heard everything from It’s all in your head. Are you being abused?,  It’s just adrenal fatigue and 3 months or rest will cure you. You’re letting yourself be too stressed about life. Your blood work is normal so nothing is wrong with you.  I wanted them to find something!  Anything!  I couldn’t just go from being FULL OF LIFE and energy one day…to feeling like I was walking thru mud and just getting by the next.  It made no sense to me and those days turned in months…and months turned into years.  No real answers…  just spending SOOOOOO much money on a ton of different Drs/Meds/Vitamins etc that left me feeling more and more hopeless. The Drs. I had seen exhausted their ideas on me.  I’m sorry, I don’t know what to do with you, was something I heard a lot.

I TRIED to live a normal life…TRIED to push myself to do classes and work…  but it would always end up in my body crashing…

My body functions kept getting worse and Drs. DID diagnosis, hypothyroid, adrenal insufficiently, POTS, Ulcerative Colitis, Rare Genetic Liver Disorder, PCOS, heart problems etc…  but I knew there had to be something deeper we hadn’t found yet.

My heart would race for no reason, my body felt like it was on fire, my spine felt like like a million razor like needles were poking into it, I couldn’t handle temperature change anymore from being outside or taking a shower, my memory loss made me feel like I was going crazy, blurry vision, weakness beyond explanation and tiredness that couldn’t be quenched no matter how much sleep I got, heart palpitations hourly, 1st degree heart blocks, I wasn’t absorbing much or anything, and my list of symptoms could go on and on and on. I was going downhill…FAST…and the Drs. didn’t know what to do.  I started having to get regular shots/IV’s etc just to keep my body going.

FINALLY, 7 years into this struggle…a new Dr. I had just seen for the first time said, “You have Lyme Disease”….we tested and sure enough!!! She was right!!! My great uncle had died from Lyme…and my Grandpa was fighting it as well…so I knew what a horrible disease it is.  I was both relieved and overwhelmed on hearing the diagnosis. Relieved to FINALLY know what was wrong with me…and overwhelmed knowing that I had quite a long road ahead of me.  That was about  year ago and I’m just recently starting to really be able to focus on attacking the Lyme Disease.  My Ulcerative Colitis was in such an advanced state that we needed to spend a year clearing that up before we could really hit Lyme full force.  We believe the Lyme attacked my gut area and caused the UC…and we thankfully have been able to reverse that vicious disorder of UC and now, FINALLY, the journey to really attacking and beating the Lyme is beginning.

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Thanks so much for reading!

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