Hello Everyone! It has been quite awhile since I have done an update on here, mostly because of the weakness these past several months have contained. Also, because writing about Lyme is extremely difficult for me. When I do have energy for writing, I prefer to write about something that has nothing to do with the illness that constantly reminds me of it’s presence with the pain and other symptoms. It’s also hard to know what to share….I so appreciate people requesting updates from me, but never want to over burden anyone…and feel bad always writing about my lyme disease. But as SO many of you are on this journey with me through your prayer and support and because I truly believe that God has a plan through this and that documentation is important, I am going to try to be better at updating as my strength increases. :-) Thank you for bearing with me and for being so kind. <3
I was unable to do my normal treatments this week in Grand Rapids, but was able to go in today for an IV here in Lansing. Up until the “Lyme Episode” that caused this relapse back in the beginning of the Fall every time I received an IV I would get a MAJOR burst of energy and feel great for a few hours. I SO loved IV days because of that! ;-) Unfortunately now, I feel nothing but exhaustion even after getting a double IV in one day. There’s not even a small increase in energy. My Doctors said that is a sign of my body being so weak and run down and depleted of everything that I need the nutritional IV’s all the more. I will continue getting at least a double IV every week until my body starts balancing back out and strength returns.
Regarding my Lyme and severe gut infection-I just completed a 2 week course of daily antibiotic shots that were really hard to push through. SOOOOO grateful to have those 2 weeks over. The “die off” if causes from killing the Lyme is pretty severe along with the other side effects strong meds like that give me. I’ll be doing another test this week to check the status of my gut infection. Please pray it has cleared up and that we can finally get on top of my Ulcerative Colitis. There is a definite correlation between when my Ulcerative Colitis is under control and when I start getting on top of Lyme. When my UC is not under control….Lyme goes crazy in my body because my immune system is so extremely compromised and can’t deal with two big issues very well.
Tomorrow I start 4 incredibly strong herbals to kill Lyme…2 of them I have been on before and they really helped to lower the Lyme count in my blood. The 2 new ones will be to kill lyme in my brain and central nervous system… I know I’m repeating myself in this next sentence, but I get asked so many questions about it that I will explain it again. To get rid of Lyme as chronic as mine, and that is in every organ of my body and in every form, there is no *one* medication or *one* herbal/natural supplement or treatment that works. The Lyme builds a resistance to medications as well as natural products and because of that you have to do what’s called “pulsing”. Where you start and stop antibiotics and strong herbals…there is a science behind it and basically, it helps to keep the Lyme guessing and unable to build a resistance to any *one* thing. ;-) I would appreciate prayer that easing onto these 4 herbals that kill lyme in different forms goes well. The “die off” or “herxing” from killing lyme with these is anything but gentle and often makes me feel quite a few times worse before feeling in any way better. It’s all part of the Lyme recovery process. So even if it means worse before better, I’m ALL in this. Lyme has stayed plenty long enough as far as I’m concerned! ;-)
A HUGE happy thing for me today was Mom pushed me around in a wheel chair at the grocery store…until I got too dizzy….maybe 15 minutes of grocery shopping bliss!!! And oh my goodness!!!! It felt AMAZING to be someplace other than the Doctors office! That is the FIRST time I’ve been inside a store since September!! I felt like a little kid in a candy store! It was so fun. ;-) I’m very grateful to have the energy to sit up for that long. God is so good. Standing and walking is still EXTREMELY difficult. I now understand why so many chronic Lyme patients have to go through physical therapy to learn how to walk again. My muscles just don’t want to work right and I’m so weak that standing is anything but easy. I’m still completely dependent on the assistance of others with walking or standing….but clinging always to my promise from Jesus in Isaiah 40:31. “But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.” One day soon I’ll walk again on my own! And….*tears*…I can’t even write that without crying. :-/ I’ll never stop thanking Him for strength…whether it’s to sit up, tie my shoes, be able to brush my hair…or just open my eyes…physical strength is a DIRECT gift from Him. <3 Today, the Lord was laying on my heart the precious promise that “…no good thing will he withhold from them that walk uprightly.” ~Psalms 84:11
I felt like He was speaking to my heart that as long as I am seeking Him with all of my heart, soul, mind and strength…each day…whatever that day brings…is *HIS BEST* FOR ME. And I can praise Him for that! <3 Somehow, all of this…the intense physical pain, the weakness, the hard fight against Lyme…somehow…every day…this is His Best. He is working it all out for good. And I can trust Him. <3 It brought so much joy, knowing and trusting and believing that HE.IS.AT.WORK….and the second it’s HIS BEST for me to be healed, however He sees fit to do that, there will not be a trace of sickness or lyme or weakness left in my body. <3 Jesus knows the day and hour….and in the meantime, I can rest in His love, in His timing and in His assurance that He is fighting this battle with me…spiritually and physically. <3 He cares and He has allowed Lyme for a reason. The Hope of His promises keeps my heart steady in so many ways and gives me the strength and courage to keep fighting. I’m so grateful for Jesus!
This song has been encouraging me: <3 Jehovah Rapha, the Lord my Healer is my Savior…and I am one day closer to His promised Healing. <3 Thank You, Jesus! He is the God of the impossible. <3 The Doctors that say you can never fully recover from Chronic Lyme must not know the incredible power of my God. :-) Impossible is NOT a word with Him…;-)
Here’s a picture from a few weeks ago of me getting my IV and reading Beric the Briton by G.A. Henty. Being able to read again is a HUGE answer to prayer and definitely a praise!! I never fully lost the ability…but my eyesight and dizziness prevented me from reading for any large amounts of time until recently…and I have jumped back into reading with so much excitement and I think I already have a full years worth and then some of books planned out! ;-) Thank You, Jesus for eye strength!!!
Well friends, I know this was a very long update. If you made it this far, thank you for your kindness and concern in reading. :-) Thank you for your prayers, encouragement and support. Please continue to pray for strength, perseverance, courage and a never ending hope in the promises of my Jesus! <3 Pray that no matter what the future holds…that He is glorified. This is very much still a fight for my life, but one that is also very much tenderly and lovingly in His hands. I’m grateful to Jesus for never leaving me or forsaking me and grateful to all of you for being my cheerleaders.
I promise the next update will be sooner and not as long! ;-)
With Love, Prayers & Gratefulness,